Sixty percent of chronic lymphatic patients feel alone and nine out of ten patients have difficulty living with the disease. This is mentioned in the first Lyme monitor, made by the Lyme association. The report, where it does AD On Saturday, it is based on a survey of over 1,600 chronic lymphatic patients.
Approximately half of those surveyed say they barely leave home and can not study or work. About a sixth of those interviewed say that they spend much of their time in a dark room due to sensitivity to light and sound. Suicidal thoughts among patients are approximately three times more common than the average. "The quality of life of chronic lymphatic patients is miserable," the report concludes.
First important survey
It is the first time that a survey is made between so many lymphatic patients with persistent complaints. The Lyme monitor is not a separate study. The questionnaire was prepared by a total of 24 chronic lymphatic patients and performed between people who were already in contact with the Lyme Association and who could be claiming claims above the average. Sixty percent of respondents are members of the association.
"We did the research because we know that chronic lymphocytes end up quickly outside of the Dutch medical circuit," says Fred Verdult, the president of the association. "Since we think that the disease should take much more seriously, we present the report Tuesday to the House of Representatives."
One of the problems with Lyme's chronic disease is that it is difficult to determine medically. Often, patients travel from doctor to doctor with several different symptoms before being diagnosed, if they do. Blood tests do not always prove it's Lyme (this applies to a fifth of respondents) and antibiotics are not always left. As a result, patients tend to go to foreigners, where they sometimes take refuge in treatments that have not been scientifically studied.
There remains a group where Lyme disease can not be diagnosed despite extensive research, says Joppe Hovius, professor of internal medicine and founder of the multidisciplinary center of Amsterdam in Lyme disease at AD. The president of the Lyme Association does not see evidence that these patients do not have Lyme disease: "The Lyme disease test is a test of antibodies, which is not diagnosed in a quarter of the cases," says Verdult . "And there is no evidence to prove active Lyme. That's precisely what you need to do the research."
Lyme disease is caused by bacteria Borrelia burgdorferi. It can become infected through the bite of an infected tick, among other things. In the Netherlands, about 27,000 people suffer Lyme disease every year, reports the National Institute of Public Health and the Environment (RIVM). Between 1,000 and 2,500 of them, they have long term complaints.
Living with Lyme – or is it another illness? Bloggers are looking for foreign diagnoses and alternative treatments, with or without the help of crowdfunding. But there is no scientific evidence of his illness.